Resources

Educating Children with Velo Cardio Facial Syndrome (aka 22q11.2 and DiGeorge)

IBook for Educators and Parents:

Educating Children With Velo Cardio Facial Syndrome  (also known as 22q11.2 Deletion and DiGeorge) Second Edition

Donna Cutler-Landsman, M.S.


The first edition, published in 2007, was well received by parents and professionals who wanted to learn more about this population of students. Now, an updated second edition is enhanced with information on brain and social skills, bullying, anxiety, executive function, homeschooling, cognitive remediation, learning resources and more.  Virtually 100% of children with this syndrome will need special education programming.  This new book blends the scientific research completed within the past 15 years with practical and current educational strategies to better meet the needs of children with 22q11.2DS and other developmental disabilities. 

The book contains chapters written by leading world experts on the 22q11.2 deletion in the areas of language and learning issues, brain abnormalities, language/learning profiles, psychiatric/behavioral difficulties, health issues and a history of the syndrome.  The second section of the book is a practical guide to educating a child with 22q11.2DS from birth to young adulthood. It includes discussions on the learning challenges, educational intervention and accommodations that can be used in the classroom.  The book is suitable for use as a textbook to train special educators as well as a guide for any professionals working with children with the syndrome.  Parents will also find the book a helpful tool to better understand and advocate for their child.

Amazon reviews


*****(5 stars) Before reading the book, I knew the gist of what VCFS was. I conducted searches on the internet, talked with others who had children with the same condition, and even watched videos on various streaming sites. But this book REALLY shows you how much you are missing out on. It helps you understand what goes on in the mind and thought process of someone with VCFS. Every time I would come across something that correlated with my daughter it made me stop and think, "Ohhh, now it makes perfect sense." I am glad that I found this book and highly recommend that every parent, teacher, speech therapist, etc. who cares for or deals with VCFS kids should certainly think about owning this. It is worth every penny!

*****(5 stars) I really love this book. From it you get very good information on 22q11.2 syndrome. I recommend it for parent

So What's the Difference?

Available now in four themes (race car, jungle, coral reef and butterfly), students can choose the template that appeals to them.  This book is designed to assist students in understanding the genetic basis for their syndrome and how they can be successful in school.  A French version is also available by contacting the Generation 22 support group at http://generation22.fr.

Educational CDs

Now available on CD for use on a home or school computer - a series of four previously recorded webinars.   Each video is approximately 1-1½ hours long and includes a PowerPoint presentation.  The educator training modules are designed for both professional and parent audiences.Available Modules:


Module 1 - Overview of the Syndrome: Current VCFS research, testing issues, educational concerns, classroom considerations
Module 2 - Birth to 8: Testing, therapies, pre-school, special education academics,  early math interventions, teaching literacy, social skills, behavioral interventions 
Module 3 -Ages 9-14: Academic interventions, social studies and science approaches, organization, adolescent concerns, homework management, friendship issues, middle school issues      
Module 4 -Ages 15 to Adult: High school coursework, transition, work experiences, driving, graduation issues, accessing adult services, college, IDEA law issues, mental health concerns